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LONG NON-lbc but important: Asians needed for bone marrow match (fwd)

To: Triumphs TRList <triumphs@autox.team.net>
Subject: LONG NON-lbc but important: Asians needed for bone marrow match (fwd)
From: "Carl Musson (EVENTS)" <musson@arts.usf.edu>
Date: Thu, 31 Jul 1997 10:06:08 -0400 (EDT)
Cc: British Cars Mailing Lists <alpines@autox.team.net>, autox@autox.team.net, british-cars-pre-war@autox.team.net, BritCars TRList <british-cars@autox.team.net>, mgs@autox.team.net, mini-list@autox.team.net, morgans@autox.team.net, morris@autox.team.net, riley@autox.team.net, tigers@autox.team.net, vintage-race@autox.team.net, VTR TRList <vtr@autox.team.net>
I am passing this along - I made two phone calls; one to a friend in
SanFrancisco and the other to the Research Institute referred to in the
note. This is REAL - 

apologies if you feel inappropriate

later...
/--------------------------------------------------------------------\
| CARL F. MUSSON, Coordinator           INTERNET:musson@arts.usf.edu |
| Tampa, FL       Opinions expressed are mine and not of my employer.|
\   '58 TR3A (TS25264L) - http://www.arts.usf.edu/~musson/triumph/   /

---------- Forwarded message ----------
<snipped bunches of addresses>

Dear Top5 Subscribers,

My name is Chris White, and you may know me as the owner and
editor of The Top 5 List.  I apologize in advance for using
this venue for something other than Top5 or comedy, but I
assure you this is of sufficient urgency to warrant it.

I am forwarding a message from a friend of mine, Alan Kuo,
who is dying of leukemia and has only a few months to live
unless he can find a bone marrow donor who matches him.

I assure you that this is no e-mail hoax, as I know Alan
personally and have known of his condition for some time now.
I hope that this is one instance where the awesome power of
the Internet can truly make a difference.

If you have no interest, then you needn't read further.
For those of you who *are* interested, here's Alan's message.

Thank you for anything you can do to help.

Sincerly,
Chris


July 24, 1997

Dear friends, apologies for the mass-mailing and for the delays.
Most of you have not heard from me for awhile, or at best received a
cursory note saying that I was busy.  I owe each of you an
explanation.  When reading what follows, I ask that you think of
pleasant times and conversations, both profound and light-hearted,
that I have had with each of you.  Without further ado, here is my
explanation:

As each of you already knows, I have been suffering from chronic
myelogenous leukemia for more than two years.  Various attempts to
control or eradicate the cancerous bone marrow cells have so far
failed.  But at least my doctor and I were able to keep the cancer at
bay to the extent that I could function as a normal and real human
being.  For the past two years I have sought treatments, worked and
played, traveled and enjoyed the big and little things in Life,
continued old friendships and even built new ones, and found Love.
So in a sense my cancer was not real, it was merely an abstraction
from a blood smear.

Now everything has changed, and not for the better.  On July 7, 1997,
I was diagnosed as entering 'blast crisis', where the erstwhile
chronic leukemia becomes acute and chemotherapeutic regimens become
but delaying actions to forestall the inevitable.  From three to six
months from now my cancerous marrow cells will proliferate out of
control and kill me, unless they are ruthlessly eradicated and
replaced with someone else's healthy bone marrow.  Of course that
healthy marrow must be tissue-compatible with me (must 'match' me).

Most of you already know about the existence of bone marrow donor
registries, that no one on those registries matches me, and that the
best chance of finding someone who matches me is to add as many
Asians as possible to those registries.  And many of you, thankfully,
have made great efforts to add Asians to those registries.
Unfortunately, despite two years of effort, we have not yet found a
match for me.  So today, I ask you to join me to try again.  I say,
One last push.  Because THIS IS IT.

So what to do?  Just get every Asian on the planet registered.
Here's how to do it:

1. If you are Asian, get yourself registered.  And your relatives
   too.  In the USA, it's free.

2. Get all your Asian friends, colleagues, and associates registered.

3. Pass this note (soft and hard copies) or selected parts of it to
   everyone, and I mean EVERYONE.  I have written a 'personal appeal'
   at the bottom of this email that should be suitable for this
   purpose.  The same appeal appears on my new website.

4. Website, what website?  It should be up-and-running by the time
   you get this email.  It is rudimentary, but is improving.  The
   technical master behind it is Ben Burbridge and technical
   difficulties shall be made known to him.  This website contains all
   sorts of stuff that are useful in order to get registered and to
   convince other people to register.  Feel free to copy or download
   anything there.  The URL is www.slip.net/~rwwood

5. Volunteer for registration drives, or organize one yourself.  An
   easy way to do this is to call up one of the non-profit organizations
   that exist to register Asians. There is also no reason you might not
   donate technical expertise or money to these or other such
   organizations.  In the USA, the major non-profits are:

     Asian American Donor Program (AADP)
     2363 Mariner Square Drive, Suite 241
     Alameda, CA 94501 USA
     1-800-593-6667
     510-523-3366 phone
     510-523-3790 fax
     asamdonors@aol.com

     Asians for Miracle Marrow Matches (A3M)
     Casa Heiwa, 231 E. 3rd St.
     Los Angeles, CA 90013 USA
     1-888-A3M-HOPE
     213-473-1661 phone
     a3m@ltsc.org

     Cammy Lee Leukemia Foundation (CLLF)
     37 St. Marks Place, Suite B
     New York, New York 10003 USA
     1-800-77-CAMMY
     212-460-5983 phone
     212-460-5971 fax
     cllf@juno.com

     Buddhist Compassion Relief
     Tzu-Chi Foundation USA (BCRTCFUSA)
     1000 S. Garfield Ave.
     Los Angeles, CA 91801 USA
     626-281-9801 marrow hotline
     626-281-3383 phone
     626-281-9799 fax
     buddhist.tzu.chi.free.clinic@worldnet.att.net

6. Do your own thing.  For example, Ray Lin has today taken it upon
   himself to contact every news agency in the San Francisco Bay Area
   and talk them into running a story about me.  Holle Singer filmed an
   interview with me in New York to be used as a public service
   announcement.  Ben of course created the website.  Others of you have
   volunteered to write newspaper articles or to create videos or to
   contact Asian community organizations or Asian churches.  Translation
   of my personal appeal into Korean and Vietnamese is a must (I already
   have people doing Chinese and Japanese).

7. For more information, consult the website, contact the non-profits,
   or talk to my parents James and Joyce [djea88a@prodigy.com], my
   sister Zenda [zendakuo@compuserve.com], or my sweetie Ako [ah@aapcho.
   org].  DO NOT REPLY to this email address, as it is temporary.

I find this letter strange, because as you know I am a fairly
independent kind of person.  But for the first time I truly truly
need your help.  Without it I definitely will not make it to your
next birthday party.  ;)

Good luck, take care, and of course, be most excellent to your
friends.  Love, Alan

PERSONAL APPEAL follows

Hello.  My name is Alan Kuo.  I have only three months left to live,
according to my doctors.  Only someone like you can save me.  This is
why:

I have leukemia, a cancer of the blood.  The only known cure for this
disease is a bone marrow transplant.  Without it I will die.  To
receive a transplant, I must find a tissue-matched donor.  Because
tissue type varies by ethnicity, my matching donor will most likely
be found among people like myself, people of Asian descent - like
you.

So far, I have not found a matching donor.

This is why I am appealing to you, a fellow Asian, to ask for your
help.  You and your friends can make the difference between life and
death for me, as well as for others present and future who suffer
from this cancer.  It takes just fifteen minutes of your time, a
simple blood test will determine if you are my match.  Please help
save my life by registering with your local marrow donor program.

My parents are immigrants from China and Taiwan, and I love them and
my sister dearly.  My family has pushed me to study hard at Harvard
and to earn my PhD at the Massachusetts Institute of Technology; I am
presently doing biomedical research at the University of California
at San Francisco, a premier medical center which is also treating my
leukemia.  I am sad that my promising career is being prematurely
terminated by a random disease.  I am far more saddened by the
possibility of being separated forever, in as little as three months,
from my family, from my many friends, and from my dear Ako.  And I
wish more than anything to continue enjoying this blessing we call
Life.  So please get your tissue typed, you might save a life.




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